Social and Self-stigmatization in Adults with ADHD

A German team recruited 104 adults with ADHD at both inpatient and outpatient ADHD clinics, and from ADHD self-help groups. Just under two-thirds were being treated with ADHD drugs, most with methylphenidate.

Just under a quarter reported high internalized stigma. Two in five reported high levels of alienation, meaning a sense of “not being a fully functioning, valuable member of society.” Three in ten reported high levels of social withdrawal.

On the other hand, only two participants reported high levels of stereotype endorsement, meaning personal acceptance of stereotypes associated with mental illness. And more than two-thirds reported high stigma resistance, meaning they were internally resistant to stigmatization. Thus, while most were free of significant internalized stigma, a still substantial minority were not.

Most of the participants expected to be discriminated against and treated unfairly by employers, colleagues at work, neighbors, and teachers should they reveal that they have ADHD. Relatively few expected to be discriminated against by health professionals, family, and friends. Almost half expected discrimination if they confided to strangers they were dating.

Over two-thirds of participants reported they had encountered public stereotypes concerning ADHD. But, on balance, they rated these at low levels of intensity. Nevertheless, among those perceiving such stereotypes, eight out of nine sensed some degree of public doubt about the validity of ADHD as a genuine ailment (“ADHD does not exist in adults”), and three out of four had at some point encountered the argument that “ADHD is invented by drug companies.” More than four out of five had heard allegations that ADHD results from bad parenting, and almost three in four had heard the claim that it results from watching too much television or playing too many video games.

These data call for more education of the public about the nature and causes of ADHD. Information reduces stigmatization so the widespread dissemination of the facts about ADHD is warranted.

REFERENCES

Theresa Vera Masuch, Myriam Bea, Barbara Alm, Peter Deibler, Esther Sobanski, “Internalized stigma, anticipated discrimination and perceived public stigma in adults with ADHD,” ADHD Attention Deficit and Hyperactivity Disorders (2018), doi.org/10.1007/s12402-018-0274-9.